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AHRQ Outcomes Research |
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The Agency for Healthcare Research and Quality's (AHRQ) strives to support improvements in outcomes research. The agency’s web site provides information on programs and results of outcomes research findings to clinicians. The Health Outcomes Core Library is of particular interest to librarians as it provides compilations of selected books, journals, web sites, and bibliographic databases related to health outcomes. 269 clicks |     | | |  |
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Australian Centre on Quality of Life (ACQOL) |
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The Centre has a mission to facilitate research in quality of life. The website provides resources in both theoretical and applied areas. It includes links to data sites, information on conferences, an extensive bibliography and a comprehensive directory of instruments. 278 clicks |     | | |  |
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EORTC Quality of Life web site |
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Health-Related Quality of Life (CDC) |
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Health-related Quality of Life Studies (Chapter 12 of HTA etext) |
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A comprehensive summary on health-related quality of life including a brief description of the concept, bibliographic databases to search, searching tips, links to bibliographies, websites for individual instruments and other Internet sources. 298 clicks |     | | |  |
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International Society for Pharmacoeconomic and Outcomes Research (ISPOR) |
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International Society for Pharmacoeconomic and Outcomes Research (ISPOR) promotes the practice and science of pharmacoeconomics and health outcomes assessment. It provides information on publications, conferences, and health economics issues and good research practice in health sciences research including health economics research. The Web site includes a comprehensive list of links to other pharmacoeconomic and outcomes research sites. 280 clicks |     | | |  |
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International Society for Quality of Life Research (ISOQOL) (US) |
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ISOQOL's mission is to promote the rigorous investigation of health-related quality of life measurement from conceptualization to application and practice. The web site provides details on ISOQOL publications and conferences. The Society publishes a multidisciplinary journal which includes articles on HRQOL instruments and their applications in specific health conditions. 324 clicks |     | | |  |
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MAPI Research Institute (France) |
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The mission of the MAPi Research Institute is to promote international use of patient-reported and clinical assessments through linguistic validation for appropriate cross-cultural use and interpretation. The Institute distributes quality of life instruments, validates the translations of instruments and publishes a free newsletter. The web site provides information on linguistic validation, translations and other services performed by the Institute. A topical list of questionnaires and an online information request form are also given. 283 clicks |     | | |  |
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Measurement of Health Related Quality of Life |
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Medical Outcomes Trust (US) |
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A non-profit organization, the Medical Outcomes Trust promotes the science of health outcomes measurement and is involved in the development, evaluation and distribution of standardized outcomes measures. The web site includes information on specific instruments approved by the Medical Outcomes Trust. 263 clicks |     | | |  |
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NCHOD: National Center for Health Outcomes Development (UK) |
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The web site consists of reports and publications on condition-specific, population-based and patient-assessed outcomes measures. The Patient-assessed Health Instruments (PHI) part of the web site provides links to a patient-assessed health instruments database, selection criteria, published reports and relevant links. The patient-assessed health-instruments database consist over 7000 records relating to the development and evaluation of patient assessed health instruments. 296 clicks |     | | |  |
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Quality of Life Instruments Database |
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SF-36.org |
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The Health Measurement Research Group: Health-Related Quality of Life Measures |
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World Health Organization Quality of Life Instruments (WHOQOL) |
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The World Health Organization has developed two instruments to measure quality of life in collaboration with 20 centres around the world. The web site gives information on the WHOQOL-100 and WHOQOL-BREF instruments and principal investigators. A bibliography on WHOQOL can be downloaded from the web site. 288 clicks |     | | |  |
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